I know, I've been really bad at keeping you all up to date with Dex! I promise I'll get better :) Also, I'm still working on adding some lifestyle sections to the blog. Stay tuned! 

So, this summer has been pretty fun for Declan. We decided to try swim lessons for the first time since he's been loving the water lately ( one of the things we prayed & thanked God for ). We always have to feel things out day by day for him but we knew swimming would bring the same excitement each day.  Our local parks offer swimming lessons throughout the summer so, Mike researched a bit and found that one of our local pools had an adaptive class! If you're not a special needs parent, you might not know how hard it is to find a decently priced recreational class for differently abled kids- so needless to say we were ecstatic! We immediately signed him up and once we arrived to our first class we were even more impressed. It was a one on one class! This was music to my ears and rainbows to my eyes. ( I seriously looked around to see if a unicorn would pop out ) 

Declan took right away to his instructor, Kaitlin, who was just the absolute sweetest. She was so gentle and never forced Dex to do anything he did not want. She kept him calm and he felt safe with her. Thank. You. Lord. 

Today was the last day of his first session and we just thanked Kaitlin for having a heart for kids like Dex, for really taking the time to get to know him and for simply being kind to us. We are already looking forward to the next session and thank God each day for Dex's ongoing amazing progress. 

Excited about his swim certificate! 


Happy Monday!

The kids are asleep so I thought I would try and get a post in before we turn in for the night...OR unless one of them wakes up needing to cuddle :)

Whenever I run into friends or family I haven't seen in a while, they are so sweet and always ask how Dex is doing. So, I thought it would be a great time to give a little progress report here on the blog. I'll try to keep this as short as possible. There is always SO much I can write but you would be literally reading for hours and I'm sure your eyes would cross, ha!


  • As of right now, Dex 3yrs old, is still doing one day a week for physical therapy. He works so incredibly hard and we have seen some major improvement. He can now throw a ball and actually get some air. He loves to throw baseballs and his new "skill" is throwing the football just like the quaterback. It's pretty amazing how he watches sports and really picks up on it. 
  • He can finally jump! He absolutely loves jumping. It's taken quite a while for him to get his feet off the ground. And now he can actually jump 3-4 times in a row, he's learning to jump off of items and he's learning to jump over items like a bar or a line. 
  • His climbing is getting stronger and he can now climb on the  "big slide" without much help on the stairs. 
  • Swinging is still a challenge for him. Because of his very low muscle tone ( Hypotonia ), he does not geel physically strong enough and he feels more comfortable in the baby swing.
  • Scooters and bicycles are still something he can't do, YET, but he is working so hard to grasp those skills
  • His running skills are getting better by the day to where now it actually looks like he's running. He's actually walking really fast, but it's getting there!
All in all his physical abilities still need to improve BUT he's really coming along and getting stronger each day. Certain things still hinder him like, if he puts pressure on his leg it shakes. Since we know that is a neurological issue - we just hope and pray that he grows out of those types of things.

Fine Motor:
  •  Honestly, Dex has a lot of catching up to do. He has Occupational Therapy 2 days per week after school.  Eating with utensils, simple holding of objects and having complete control is still a bit difficult. The good news is that, these are all things he can improve on. Oh and we still don't know which hand is his dominant hand since he likes to switch back and forth, ha! 

  • Dex's speech has really improved to the point that even strangers can sometimes understand what he says. 
  • He is in an individual speech session five days a week in school on top of regular group class sessions. 
  • He still says one, two and three word phrases and has hard time articulating. It's mainly because of the low muscle tone and the way his brain processes information. 


  • We are extremely impressed with the way Declan understands and learns. Since much of UPD14/PAT is unknown, we weren't sure how much he could and would learn. We are pleased to say, he's definitely a typical three year old with a sense of direction like no other. Seriously, if he came to your house once or twice, he would remember the way. He learns things so quickly ,that we know God has a hand in his life. 
  • He's still learning how to process certain things. For instance, questions. If you ask him a question, he may just repeat what you said. " Declan how was school?" He would then say " How school." He knows what you are talking about, but he doesn't quite understand how to respond yet. Yes or no questions aren't easily answered. Although, he seems to say no a lot, haha! Another example would be if I were to ask him if we wants juice or food. He won't say yes, but instead will answer "juice " or "food" in agreement.
So, yes we still have so much to accomplish BUT how amazing has his progress been??! We are so truly grateful and thank the Lord daily for His healing power. Each day we see the manifestation of his healing, even if just a little bit at a time. 

I ask that you continue to pray for us and for Declan. We believe that if two or three people stand together, there, God is. 

PS. Here's a picture of little bro, Reed. He adores Dex and their relationship is starting to really grow. I'll post more on that dynamic soon!

Please ask to use any pictures.

Time for School!

Well, the time has come. The time a lot of parents dread. The first day of school! Not that we don't want our kids to learn and become socialized, it's just ( for me anyway) we're going to miss them! For the past 3 years, it's been Dex and me. When dad's at work, mom and dex head to therapy where I ( mom) can sit in and watch. In school, I can't be there to hold his hand and give him kisses. But, you know what? We are so incredibly thankful for the opportunity to go!

Yesterday was Declan's first day. He attends a pre-school for kid's with all types of special needs and it's going to help him thrive! It's through our school district ( which we love ) and he will be there for 2 years until he starts kindergarten. We knew after he had his IEP the Lord put us in the right place. Even his therapists had nothing but great things to say about his new school.

I'll admit, it was really hard to let him go but his teachers are pretty amazing and I felt relieved and also confident in our son. The days will be long for Dex. He will attend school 5 days a week for about 3 and a half hours a day along with his daily therapies. Today, his second day, he was quite exhausted. I'm writing this around 8:15pm and he's already out for the night. It will take some getting used to. Also, since Dex has low muscle tone and bell shaped ribs, his little body has to work twice as hard as some typical kids andbecomes very tired quickly. I know being in school will help build his stamina and he will become stronger.

Here are a few snap shots from the beginning of this exciting new adventure! 

Dad made Mickey Mouse pancakes for our first day of school Breakfast. Dex was super excited and ate them both!  ( Do you see that fork holding?!! Good job buddy )

We were a little early for drop off so we waited around a bit for his teacher and all of his new friends. 

I had lots of fun preparing his lunch for his first day. These Planet Boxes are perfect for toddlers 

Here's a picture from today, day two. It was a bit harder to say, see you later for him but after a while he was great. 

All in all we are so thankful to the Lord for allowing us to experience this.  Praying for many years of great reports and super happy smiles from our little school kid. 

** please ask to use pictures**