Graduation...

Tis the season for graduations and this week our little Dex had a sweet graduation of his own!

Since birth, Dex has had multiple therapies including - Physical, Occupational and Speech. Therapy has been such a huge part of his progress and his therapists have been nothing short of amazing. They are advocates for his success and have always had his best interest at heart. A couple of weeks ago we had another assessment for his Physical therapy plan and goals  ( about every 3 months or so ). Declan has been showing SO much progress and has really made leaps and bounds. Because of that he's been meeting or surpassing his goals! During our last two sessions his amazing therapists thought it was time for Declan to graduate from PT! 


What does that mean exactly for him? It means that for his current age ( 4 ) he can pretty much handle many physical activities as peers of the same age. Some things he may not master; simply because he doesn't have the physical capability ( like low muscle tone & his Rib Placement etc...) But for the most part, he's doing really well! So, this week was our last PT session for a while! He'll have another assessment once he gets a bit older and continues to grow but for now we are going to enjoy this amazing moment in the life of Dex. Thank you Lord!

( We still have Occupational therapy so we are not saying goodbye to our friends completely... Just PT for now )



We are so incredibly proud of him and we are so thankful for his ongoing healing. Each day we thank God that He gave Dex to us in the exact way He did. We may not every fully understand why and some days we may not be as thankful, BUT we know that He works everything for the good of those who love Him. The best is yet to come!




Here's a little throwback to one of Declan's first sessions at his current therapy facility. He was around 3 months old here! 



Please do not use any pictures without permission

March...

Hello! It's March already and I seriously can't believe how quickly this year is moving. In just a few short months, Reed will be two! Which reminds me, I still haven't shared his birth story yet...Once we make the changes I want to make to the blog ( including some lifestyle posts) - I'll share!

There have been so many updates and amazing milestones Dex has made that I could probably write about 15 posts today but I'll spare you the month long read for another day, haha!

One thing I did want to share on today's post is how important being an advocate for your child is. Declan has been receiving private therapy sessions since birth and it's been one of the most beneficial aspects to his development. Now that he is in school we have access to school based programs ( in addition to his private sessions through insurance ) and we are so grateful for that. He is actually attending a preschool just for kids with Special Needs.  When we first received his IEP ( Individualized Education Program ) he was approved for School based Speech outside of the classroom and we were thrilled. One area that we really pushed for was Occupational therapy as well. Initially we weren't approved for the school based program even though it was highly recommended that he receive it. We were okay with that at first because we knew he was already getting two days a week privately , but we also knew he would need more. We prayed that his teachers and staff would really notice the need he had for additional help and boy, did God answer our prayer...



His previous teacher pulled us to the side and provided us with some advice, which we absolutely heeded and a few days later - we had new meeting for an amendment to his IEP. After our meeting we walked out with an OT plan at school for him and we are so grateful. 


I say all of this because of the realization that being your child's advocate is SO important. Even if you have typical children, you are their biggest and BEST resource. Don't hesitate to ask questions and push for the things you know your child needs. One of the hardest things for me to do is really speak up. It's something that I have been praying that I can overcome and God has really been showing me how to do this. Starting with my own children- and because I have been able to do that it's helped in other areas of my life too. Man, God is good! 


(Valentine's day fun )

You all are so amazing and we thank you so much for following our journey... We do have a few prayer requests below.

Please pray for:

- Dex's upcoming surgery ( don't have a date set yet )
- His respiratory system ( we had a recent bout with pneumonia and he still has a lingering cough )
- For his social skills to really develop positively ( He started baseball! More on that soon )

XO- Dex


Four...

It's been such a long while since my last post and I'm sorry about that. I will get better in the new year! We have been so busy that we haven't even had the chance to take Christmas photos this year! 

A couple of weeks ago, we celebrated Dex's 4th birthday! While we love to celebrate his birthday in a big way, this year we decided to keep it super small . One of the reasons being, Dex can get easily overwhelmed with tons of people and we wanted him to feel as comfortable as possible. Even singing happy birthday can sometimes cause him to cry or feel uncomfortable so, we really wanted his experience this year to be one that would give him great memories. A handful of family members, cousins and the park made for his perfect day. Here are a few snapshots from the big FOUR and then a few prayer requests to follow... 


His birthday is pretty close to Christmas. So close, that we already had decorations ready for photos, ha!


Baby Brother loved the sand at the park. Dex's teachers made him that sweet hat at school the previous day and he did not want to take it off!


Loving his balloons ( the #4 balloon is literally still inflated in his room).


 His actual birthday was a school day so of course we had a little phone photo shoot at school :)


We went for birthday pancakes after school and we didn't want to forget to include baby bro, Reed in the pictures. 


A few prayer requests...
  • We recently learned that Dex will actually have to have another surgery in the next few weeks. We would love your prayers for a smooth procedure and easy recovery.

  • This past week Dex had a little health scare which led us to the doctor for the some meds, and an intense breathing treatment. Although Dex is pretty healthy normally, we can't take chances with his respiratory system. His oxygen levels dipped below a comfortable and safe level and he needed to be monitored closely.  We would love your prayers for a quick healing and that his airway opens up for easy and smooth breathing. 

  • Pray for mama. The past couple of weeks have been a bit of a challenge. Not only with raising these amazing babies but personally as well. I ( mama) would love your prayers that the Lord will really mold and make me in the way He's called. That I can be that better Mom, Wife, Sister, Daughter and friend. 
 You all have been so supportive of us and so loving of our special son. We love and appreciate you more than you know. Have a very Merry Christmas and we will see you all in the new year!